I know my sister has already put a post on for the day, but I was finally able to get on the computer tonight. After reading all of the inspirational notes I just wanted to write to thank everyone for loving Kole so much. All of the prayers are working wonders. The miracles my family has seen in the last month makes me wonder how its possible not to believe in God. He has been so good to us.

Kole is doing great. He is almost completely back to himself again. He can walk steadily and go where ever he wants without any help. Today he ran in the grass and climbed up the ladder to go down the slide. His coordination in his right side is getting better too! He continues to work with it although he does not like to use it. Steve has been praying that by Friday he will be able to write his name by himself with it again.

I just have to tell you how funny Kole is. He does not wake up from the anesthesia very well. Almost everyday he is in a terrible mood and he is mad at the nurses (The doctors have told us that this is a typical response to have after waking up).
Today I walked into the recovery room and the nurse says to me "Well he keeps telling me he is mad." I looked at him and he just squinted up his face and growled. I told him it was ok to be mad. He didn't really listen to me but he turns to the nurse with a scowling face, mean face and says "I can growl meaner than you." The nurse and I just laughed. That is my typical Kole always better than someone else at doing something.

There is no doubt that Steve and I believe that this is where God wanted us to be. We cannot say enough about how wonderful this hospital is. Imagine this. At the Cleveland clinic I believe there are only 3 or 4 full time pediatric oncologists not including the residents and those in fellowships that treat every kind of cancer. For almost every kind of childhood cancer St. Judes has a specific doctor that researches and treats their particular specialty. For example, the Clinic may see only 3 or 4 Medullablastomas a year while Dr. Gajjar at St. Judes sees 30 to 50. Here Dr. Gajjar, our doctor, has been studying and researching strictly medulla's for 17 years. This is be far the best place for Kole to get his treatment.

Lastly I just wanted to thank everyone for all of the cards, gifts, money, time, and prayers. Your kind words and special prayers bring joy to our family everyday. We truly love all of the support and we wish we could thank everyone in person with a great big hug. We love you all.

God Bless,
Janni

Here is a little list of prayer requests:
*Kole will be able to concentrate for 50 minutes on the computer,complete healing, not long term effects from the radiation and chemo, and for his coordination on the right side of his body.
*There are so many kids here that are so special but also need your prayers. I will give a few names now and in the future I will give more.
-Sarah - medullablastoma-praise that she began walking yesterday
-Caz- medullablastoma and swelling in his head like Kole
-Katherine-brain stem glioma, see clearly due to double vision
-Kate- brain stem glioma
-Kenyon-Neuroblastoma